Burton Tennis & Squash Club
Ashby Road • Burton-on-Trent • DE15 0LQ
Tel: 01283 565043
Dear Members.
Please see flier for our next event at BTSC.
To give you some context of the charity please read the testimony below, some of you may find this distressing. Ottilie's parents are well know to the Tennis community and we feel we should offer our support. Thank you.
Little Ottilie’s world changed forever in a matter of days. On 8th May, we took Ottie to the doctors due to a small lump on her temple which hadn’t reduced. The doctor urgently referred her to hospital where she was given a CT scan. That’s when our worst nightmare started and our lives changed forever. They found a large and aggressive tumour in Ottilie’s skull, pressing significantly against her brain.
We were blue lighted to Nottingham QMC for further testing, where the devastating diagnosis followed: high-risk neuroblastoma, a rare and aggressive childhood cancer that we learned had already spread to her skull, spine and bone marrow. The odds are not in Ottie's favour, with survival currently sitting between 30-50%. But, there is chance and that’s all we have.
Before even reaching her second birthday, Ottie has already endured five general anaesthetics, surgery to her skull, countless scans and tests, a central line procedure, bone marrow biopsies, hearing tests, eye examinations and heart scans.
On 21st May, she began emergency intensive chemotherapy, the beginning of an incredibly long and gruelling treatment journey. Over the next 18 months, Ottilie will face further intensive chemotherapy, surgery, blood transfusions, stem cell transplant, radiotherapy and immunotherapy. Despite everything she has already been through in the past two weeks, she continues to fight with unbelievable strength and a smile, every single day. Anyone that knows Ottilie will tell you what a strong, independent, sassy little character she is!!
Even after all this treatment and the severe side effects that come with it, neuroblastoma carries a frighteningly high relapse rate. If the cancer returns, survival chances drop dramatically.
There is hope in the form of a promising vaccine treatment currently being trialled at Memorial Sloan Kettering Cancer Center in New York, designed to help prevent neuroblastoma returning. Unfortunately, this treatment is not currently available in the UK, so we are fundraising to give Ottilie access to this and any other potentially life-saving treatments available in the future.
The funds raised will go towards Ottilie’s treatment, travel and medical costs, improving her quality of life, and supporting us as a family as we navigate the hardest fight of our lives.
As a family, asking for help does not come naturally, but we need to know we have done absolutely everything possible to give our beautiful little girl the best chance of survival.
Every donation, no matter how small, truly means the world to us. If any funds raised are not needed for Ottilie’s treatment, they will be donated directly to neuroblastoma research to help other children and families facing this devastating disease.
Thank you for reading, sharing, donating, and standing beside Ottilie and us all in her fight. It is appreciated more than you will ever know.
All our love,
James, Sophie, Archie & Ottilie
26/06/2026
July 2026
June 2026
May 2026
April 2026
March 2026
February 2026
January 2026
December 2025
November 2025
October 2025
September 2025
August 2025
July 2025
June 2025
May 2025
April 2025
March 2025
February 2025
January 2025
December 2024
November 2024
October 2024
September 2024
August 2024
July 2024
June 2024
May 2024
April 2024
March 2024
February 2024
January 2024
December 2023
November 2023
October 2023
September 2023
August 2023
July 2023
June 2023
May 2023
April 2023
March 2023
February 2023
January 2023
December 2022
November 2022
October 2022
September 2022
August 2022
July 2022
June 2022
May 2022
April 2022
March 2022
February 2022
January 2022
December 2021
November 2021
October 2021
September 2021
August 2021
July 2021
June 2021
May 2021
April 2021
March 2021
January 2021
December 2020
November 2020
October 2020
September 2020
August 2020
July 2020
June 2020
May 2020
April 2020
March 2020
February 2020
January 2020
December 2019
November 2019
October 2019
September 2019
August 2019
July 2019
June 2019
April 2019
March 2019
January 2019
December 2018
November 2018
October 2018
September 2018
August 2018
July 2018
June 2018
May 2018
April 2018
February 2018
January 2018
December 2017
Hotmail/Outlook Users
GMail Users
Other email service providers may have similar settings -- please follow their instructions. If not, contact their support desk and request delivery of messages from burtonsquash@no-reply.mycourts.co.uk.